Welcome to Your Story, Your HIV Wisdom™, where people living with and affected by HIV are invited to share what they've learned from their HIV journeys. With it, we’ll create a collection of shared wisdom for the HIV community. Your submission will also make a difference. For each submission, you can direct Janssen Therapeutics to make a donation to one of 2 HIV nonprofit organizations, for a total donation of up to $10,000 per organization at the end of the campaign.* Your wisdom is important - we hope you'll share it.

*Limit of one incremental donation for each type of wisdom submitted - text, audio, visual, or video.

Wisdom Gallery

See this month’s highlighted wisdom selections, recommended by our community advisors. Thanks to everyone who has shared their personal wisdom – we’ve received so many inspiring perspectives. If your wisdom didn’t appear in this month’s selection, keep watching this space – we’ll be posting more each month!

Living with HIV: Sharing your wisdom

Everyone has HIV stories and wisdom to share. From tips about your journey to ideas for talking to friends and family about your HIV status, HIV wisdom can be your own story and how you feel about living with HIV.

What is Your Story, Your HIV Wisdom™?

Your Story, Your HIV Wisdom™ asks you to share your HIV wisdom in any way that you want – written, audio, video or another visual medium. Our advisors, some of the leading voices in the HIV community, will help us highlight some selections to share each month in our Wisdom Gallery. Once the submission period closes on March 31, 2016, it’s your turn to pick. Come back to vote for the wisdom that speaks to you. The submissions with the most votes will be featured on the website in Spring 2016.

What should I share?

We believe everyone has wisdom to share. We’re looking for your wisdom about what you have learned on your HIV journey that you’d like to share with others.

  • If you’ve just learned you are living with HIV, how do you feel about the start of your HIV journey?
  • No matter how long you have been living with HIV, what have you learned along the way?
  • What would you want to tell someone recently diagnosed with HIV?
  • Do you have any tips for living with HIV?

Share your wisdom in the form of text, audio, video or other visual medium files.

Still not sure what to share? View some sample wisdom from our community advisors here to get ideas. Please note the samples from our community advisors have not been submitted as part of Your Story, Your HIV Wisdom™ and will not be considered as a submission in this campaign.

Why should I share my story?

You may inspire others on their journey and encourage them to share their wisdom.

For each submission, you can direct Janssen Therapeutics to make a donation to one of 2 HIV nonprofit organizations, for a total donation of up to $10,000 per organization at the campaign’s end.* Read more about the nonprofit organizations below.

*Limit of one incremental donation for each type of wisdom submitted - text, visual, audio or video.

AIDS United
Washington, DC // AIDSUnited.org

AIDS United’s mission is to end the AIDS epidemic in the United States. AIDS United’s grantmaking portfolio dates back to the founding of the National AIDS Fund in 1987 and spans programs including, but not limited to, syringe access, access to care, capacity building, HIV prevention and advocacy. For more than two decades, AIDS United has supported community-driven responses to the HIV epidemic around the country that reach the nation’s most disproportionately affected populations, including gay and bisexual men, communities of color, women and people living in the deep South.

The Black AIDS Institute
Los Angeles, CA // BlackAIDS.org

Founded in May of 1999, the Black AIDS Institute is the only national HIV/AIDS think tank focused exclusively on black people. The Institute's mission is to stop the AIDS pandemic in black communities by engaging and mobilizing black institutions and individuals in efforts to confront HIV. The Institute interprets public and private sector HIV policies, conducts trainings, offers technical assistance, disseminates information and provides advocacy mobilization from a uniquely and unapologetically black point of view. Our motto describes a commitment to self-preservation: “Our People, Our Problem, Our Solution.”

What is PREZCOBIX®
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  • PREZCOBIX® is a prescription HIV-1 (Human Immunodeficiency Virus 1) medicine used with other antiretroviral medicines to treat HIV-1 infection in adults. HIV is the virus that causes AIDS (Acquired Immune Deficiency Syndrome). PREZCOBIX® contains the prescription medicines PREZISTA® (darunavir) and TYBOST® (cobicistat).
  • It is not known if PREZCOBIX® is safe and effective in children under 18 years of age.
  • When used with other antiretroviral medicines to treat HIV-1 infection, PREZCOBIX® may help:
    • reduce the amount of HIV-1 in your blood. This is called “viral load.”
    • increase the number of CD4+ (T) cells in your blood that help fight off other infections.
  • PREZCOBIX® is always taken in combination with other HIV medications for the treatment of HIV-1 infection in adults. PREZCOBIX® should be taken once daily with food.
  • PREZCOBIX® does not cure HIV-1 infection or AIDS, and you may still experience illnesses associated with HIV-1 infection. You must keep taking HIV-1 medicines to control HIV-1 infection and decrease HIV-related illnesses.
  • Ask your healthcare provider if you have any questions on how to prevent passing HIV to other people.
  • Please read the Important Safety Information below and talk to your healthcare provider to learn if PREZCOBIX® is right for you.

Important safety information
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What Is the most Important Information I should know about PREZCOBIX®?

  • PREZCOBIX® may cause liver problems. Some people taking PREZCOBIX® may develop liver problems which may be life-threatening. Your healthcare provider should do blood tests before and during your treatment with PREZCOBIX®.
    • Chronic hepatitis B or C infection may increase your chance of developing liver problems. Your healthcare provider should check your blood tests more often.
    • Signs and symptoms of liver problems include dark (tea-colored) urine, yellowing of your skin or whites of your eyes, pale-colored stools (bowel movements), nausea, vomiting, pain or tenderness on your right side below your ribs, or loss of appetite. Tell your healthcare provider if you develop any of these symptoms.
  • PREZCOBIX® may cause severe or life-threatening skin reactions or rash. Sometimes these skin reactions and skin rashes can become severe and require treatment in a hospital. Call your healthcare provider right away if you develop a rash.
    • Stop taking PREZCOBIX® and call your healthcare provider right away if you develop any skin changes with symptoms such as fever, tiredness, muscle or joint pain, blisters or skin lesions, mouth sores or ulcers, red or inflamed eyes like "pink eye" (conjunctivitis).
  • PREZCOBIX®, when taken with certain other medicines, can cause new or worse kidney problems, Including kidney failure. Your healthcare provider should check your kidneys before you start and while you are taking PREZCOBIX®.

Who should not take PREZCOBIX®?

  • Do not take PREZCOBIX® with any of the following medicines: alfuzosin (Uroxatral®), cisapride (Propulsid®, Propulsid® Quicksolv), colchicine (Colcrys®, Mitigare®, if you have liver or kidney problems), dronedarone (Multaq®), dihydroergotamine (D.H.E.45®, Embolex®, Migranal®), ergotamine tartrate (Cafergot®, Ergomar®, Ergostat®, Medihaler®, Migergot®, Wigraine®, Wigrettes®), methylergonovine (Methergine®), lovastatin or a product that contains lovastatin (Altoprev®, Advicor®, Mevacor®), lurasidone (Latuda®), oral midazolam (Versed®), pimozide (Orap®), ranolazine (Ranexa®), rifampin (Rifadin®, Rifater®, Rifamate®, Rimactane®), sildenafil (Revatio®) when used for pulmonary arterial hypertension (PAH), simvastatin or a product that contains simvastatin (Simcor®, Vytorin®, Zocor®), St. John’s Wort (Hypericum perforatum) or a product that contains St. John’s Wort, or triazolam (Halcion®).
  • Serious problems can happen if you take any of these medicines with PREZCOBIX®.

What should I tell my healthcare provider before taking PREZCOBIX®?

  • About all health problems. Tell your healthcare provider if you have liver problems, including hepatitis B or hepatitis C, have kidney problems, are allergic to sulfa (sulfonamide), have diabetes, have hemophilia, or have any other medical condition, are pregnant, breastfeeding, or plan to become pregnant or breastfeed. Tell your healthcare provider if you become pregnant while taking PREZCOBIX®.
  • About all medicines you take. Tell your healthcare provider about all the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements. Some medicines interact with PREZCOBIX®. Keep a list of your medicines to show your healthcare provider and pharmacist. Do not start taking a new medicine without telling your healthcare provider. Your healthcare provider can tell you if it is safe to take PREZCOBIX® with other medicines.

What are the possible side effects of PREZCOBIX®?

  • The most common side effects of darunavir, one of the medicines in PREZCOBIX®, include diarrhea, nausea, rash, headache, stomach area (abdominal) pain, and vomiting.
  • Other possible side effects include:
    • High blood sugar, diabetes or worsening diabetes, and increased bleeding in people with hemophilia have been reported in patients taking protease inhibitor medicines, including PREZCOBIX®.
    • Changes in body fat can happen in people who take HIV-1 medicines. The exact cause and long-term health effects of these changes are not known.
    • Changes in your immune system (Immune Reconstitution Syndrome) can happen when you start taking HIV medicines. Your immune system may get stronger and begin to fight infections that have been hidden in your body for a long time.

These are not all of the possible side effects of PREZCOBIX®. For more information, ask your healthcare provider.

Tell your healthcare provider if you have any side effect that bothers you or that does not go away.

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch or call 1-800-FDA-1088.

Please see full Product Information for more details.