HIV Stories: About Your Story, Your HIV Wisdom

Janssen Therapeutics is pleased to sponsor Your Story, Your HIV Wisdom™ as a space to share and showcase the wisdom of people living with or affected by HIV.  Through Your Story, Your HIV Wisdom™, Janssen Therapeutics aims to support the HIV community and empower people living with and affected by HIV to share and seek wisdom for their journey. Your Story, Your HIV Wisdom™ celebrates the wisdom within. For even more HIV wisdom, please click here for wisdom inspired by real voices from the HIV journey.

More information

Want to know more about the campaign? Check out some additional information below you can share.

About the Wisdom gallery

Some of the leading voices in the HIV community read each submission and selected the inspiring wisdom featured in our Wisdom Gallery. Then it was your turn to vote and choose the wisdom that was most inspiring to the community.

We appreciate all submissions that we received and the unique perspective that each individual had to offer. Please continue to share your wisdom within the community to help others living with or affected by HIV.

Meet our advisors

We sought wisdom from some of the leading voices in the HIV community on this project. Each of our advisors offers a unique perspective on the HIV journey and serves as an advocate and source of wisdom in the HIV community. With them, we selected highlights of inspiring wisdom which are featured in the Wisdom Gallery. Janssen Therapeutics is compensating the campaign advisors for their time spent as part of Your Story, Your HIV Wisdom™.

Josh Robbins

Josh Robbins is an HIV/AIDS activist and founder of imstilljosh.com. He hosts the HIV Video Minute, a weekly digital series examining notable stories in under 60 seconds. He's also a global advisor for dotHIV, a global correspondent for MTV Voices and a video correspondent for HIV Plus Magazine. Josh was named to the “POZ 100” in 2013 and owns a digital marketing niche social media company in Nashville, TN. Josh is well-known among the community for using social and digital media to share his wisdom in a unique way.

Maria Mejia has battled HIV for 26 years and is the co-author of her biography, “From a Warrior’s Passion and Pain”. Maria is a powerful activist for HIV education, treatment, testing and prevention, with a strong presence in traditional and social media. She is an active blogger and vlogger, motivational speaker and founder of a prominent international HIV/AIDS support group online. In addition to her work as a Red Cross volunteer and HIV educator for Jackson Memorial Hospital, Maria is involved in several campaigns, including “Dab the AIDS Bear Project,” the U.S. Center for Disease Control and Prevention’s “Let’s Stop HIV Together” program and the “The Stigma Project.” Maria is also a Global Ambassador for The Well Project. Maria lives with her wife, Lisa, in Miami, FL.

Guy Anthony

Diagnosed with HIV as a teenager, Guy Anthony has dedicated his adult life to the pursuit of neutralizing global HIV/AIDS-related stigmas. He served as a member of Atlanta’s black gay Community Advisory Board 2010-2013, contributes to POZ and blog.AIDS.gov and co-created the hit online web series MR, named in honor of black gay rights activist and filmmaker Marlon Riggs in 2011. After releasing his book in 2012, “Pos(+)tively Beautiful: A Book of Affirmations, Advocacy & Advice,” Guy was selected as a National Spokesperson and Ambassador for National Black HIV/AIDS Awareness Day in 2013.

About the nonprofit organizations

Your Story, Your HIV Wisdom™ is proud to recognize the below organizations which provide counseling, resources and support to people living with HIV and their families and friends.

AIDS United
Washington, DC // AIDSUnited.org

AIDS United’s mission is to end the AIDS epidemic in the United States. AIDS United’s grant-making portfolio dates back to the founding of the National AIDS Fund in 1987 and spans programs including, but not limited to, syringe access, access to care, capacity-building, HIV prevention and advocacy. For more than two decades, AIDS United has supported community-driven responses to the HIV epidemic around the country that reach the nation’s most disproportionately affected populations, including gay and bisexual men, communities of color, women and people living in the deep South.

The Black AIDS Institute
Los Angeles, CA // BlackAIDS.org

Founded in May of 1999, the Black AIDS Institute is the only national HIV/AIDS think tank focused exclusively on black people. The Institute's mission is to stop the AIDS pandemic in black communities by engaging and mobilizing black institutions and individuals in efforts to confront HIV. The Institute interprets public and private sector HIV policies, conducts trainings, offers technical assistance, disseminates information and provides advocacy mobilization from a uniquely and unapologetically black point of view. Our motto describes a commitment to self-preservation: “Our People, Our Problem, Our Solution.”

About Janssen Therapeutics

At Janssen Therapeutics, we are dedicated to addressing and solving some of the most important unmet medical needs of our time in HIV, hepatitis C and other infectious diseases. Driven by our commitment to patients, we develop innovative products, services and healthcare solutions to help people throughout the world. Headquartered in Titusville, New Jersey, Janssen Therapeutics, Division of Janssen Products, LP, is one of the Janssen Pharmaceutical Companies. Visit JanssenTherapeutics.com for more information and follow us on Twitter at @JanssenUS.

What is PREZCOBIX®
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  • PREZCOBIX® is a prescription HIV-1 (Human Immunodeficiency Virus 1) medicine used with other antiretroviral medicines to treat HIV-1 infection in adults. HIV is the virus that causes AIDS (Acquired Immune Deficiency Syndrome). PREZCOBIX® contains the prescription medicines PREZISTA® (darunavir) and TYBOST® (cobicistat).
  • It is not known if PREZCOBIX® is safe and effective in children under 18 years of age.
  • When used with other antiretroviral medicines to treat HIV-1 infection, PREZCOBIX® may help:
    • reduce the amount of HIV-1 in your blood. This is called “viral load.”
    • increase the number of CD4+ (T) cells in your blood that help fight off other infections.
  • PREZCOBIX® is always taken in combination with other HIV medications for the treatment of HIV-1 infection in adults. PREZCOBIX® should be taken once daily with food.
  • PREZCOBIX® does not cure HIV-1 infection or AIDS, and you may still experience illnesses associated with HIV-1 infection. You must keep taking HIV-1 medicines to control HIV-1 infection and decrease HIV-related illnesses.
  • Ask your healthcare provider if you have any questions on how to prevent passing HIV to other people.
  • Please read the Important Safety Information below and talk to your healthcare provider to learn if PREZCOBIX® is right for you.

Important safety information
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What Is the most Important Information I should know about PREZCOBIX®?

  • PREZCOBIX® may cause liver problems. Some people taking PREZCOBIX® may develop liver problems which may be life-threatening. Your healthcare provider should do blood tests before and during your treatment with PREZCOBIX®.
    • Chronic hepatitis B or C infection may increase your chance of developing liver problems. Your healthcare provider should check your blood tests more often.
    • Signs and symptoms of liver problems include dark (tea-colored) urine, yellowing of your skin or whites of your eyes, pale-colored stools (bowel movements), nausea, vomiting, pain or tenderness on your right side below your ribs, or loss of appetite. Tell your healthcare provider if you develop any of these symptoms.
  • PREZCOBIX® may cause severe or life-threatening skin reactions or rash. Sometimes these skin reactions and skin rashes can become severe and require treatment in a hospital. Call your healthcare provider right away if you develop a rash.
    • Stop taking PREZCOBIX® and call your healthcare provider right away if you develop any skin changes with symptoms such as fever, tiredness, muscle or joint pain, blisters or skin lesions, mouth sores or ulcers, red or inflamed eyes like "pink eye" (conjunctivitis).
  • PREZCOBIX®, when taken with certain other medicines, can cause new or worse kidney problems, Including kidney failure. Your healthcare provider should check your kidneys before you start and while you are taking PREZCOBIX®.

Who should not take PREZCOBIX®?

  • Do not take PREZCOBIX® with any of the following medicines: alfuzosin (Uroxatral®), carbamazepine (Carbatrol®, Epitol®, Equetro®, Tegretol®, Tegretol-XR®, Teril®) cisapride (Propulsid®), colchicine (Colcrys®, Mitigare®, if you have liver or kidney problems), dronedarone (Multaq®), elbasvir and grazoprevir (Zepatier®), dihydroergotamine (D.H.E.45®, Migranal®), ergotamine tartrate (Cafergot®, Ergomar®, Ergostat®, Medihaler®, Migergot®, Wigraine®, Wigrettes®), methylergonovine (Methergine®), lovastatin or a product that contains lovastatin (Altoprev®, Advicor®, Mevacor®), lurasidone (Latuda®), oral midazolam (Versed®), phenobarbital (Luminal®), phenytoin (Dilantin®, Dilantin-125®, Phenytek®), pimozide (Orap®), ranolazine (Ranexa®), rifampin (Rifadin®, Rifater®, Rifamate®, Rimactane®), sildenafil (Revatio®) when used for pulmonary arterial hypertension (PAH), simvastatin or a product that contains simvastatin (Simcor®, Vytorin®, Zocor®), St. John’s Wort (Hypericum perforatum) or a product that contains St. John’s Wort, or triazolam (Halcion®).
  • Serious problems can happen if you take any of these medicines with PREZCOBIX®.

What should I tell my healthcare provider before taking PREZCOBIX®?

  • About all health problems. Tell your healthcare provider if you have liver problems, including hepatitis B or hepatitis C, have kidney problems, are allergic to sulfa (sulfonamide), have diabetes, have hemophilia, or have any other medical condition, are pregnant, breastfeeding, or plan to become pregnant or breastfeed. Tell your healthcare provider if you become pregnant while taking PREZCOBIX®.
  • About all medicines you take. Tell your healthcare provider about all the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements. Some medicines interact with PREZCOBIX®. Keep a list of your medicines to show your healthcare provider and pharmacist. Do not start taking a new medicine without telling your healthcare provider. Your healthcare provider can tell you if it is safe to take PREZCOBIX® with other medicines.

What are the possible side effects of PREZCOBIX®?

  • The most common side effects of darunavir, one of the medicines in PREZCOBIX®, include diarrhea, nausea, rash, headache, stomach area (abdominal) pain, and vomiting.
  • Other possible side effects include:
    • High blood sugar, diabetes or worsening diabetes, and increased bleeding in people with hemophilia have been reported in patients taking protease inhibitor medicines, including PREZCOBIX®.
    • Changes in body fat can happen in people who take HIV-1 medicines. The exact cause and long-term health effects of these changes are not known.
    • Changes in your immune system (Immune Reconstitution Syndrome) can happen when you start taking HIV medicines. Your immune system may get stronger and begin to fight infections that have been hidden in your body for a long time.

These are not all of the possible side effects of PREZCOBIX®. For more information, ask your healthcare provider.

Tell your healthcare provider if you have any side effect that bothers you or that does not go away.

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch or call 1-800-FDA-1088. You may also report side effects to Janssen Products, LP at 1-800-JANSSEN (1-800-526-7736).

Please see full Product Information for more details.

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